Rare Diseases

Located within the McGill University/Genome Quebec Innovation Centre, the Centre of Genomics and Policy (CGP) is at the crossroads of the legal, medical and public policy fields. The CGP promotes prospective structuring and guidance for both research in genomic health sciences and its applications. Within a multidisciplinary perspective and in collaboration with national and international partners, the CGP analyzes the socio-ethical and legal norms influencing multiple aspects of the promotion, prevention and protection of human health.

Currently, the CGP’s research covers five areas of genomics and policy: procreation and reproductive genetics, pediatric health, privacy, public health, and, personalized medicine. These domains are approached using three guiding foundations: internationalization, policy development and knowledge transfer. The CGP promotes internationalization by undertaking comparative analyses of various laws, policies and guidelines. It participates in the creation of international consortia with a view to promoting collaborative, multidisciplinary policymaking. Finally, via the HumGen law and policy research database, the CGP promotes knowledge transfer of its work.