<div id="hybrid-search-3" class="widget search widget-search"><div class="widget-inside"><form method="get" class="search-form" id="search-form" action="https://rare-diseases.ca/"><div><input class="search-text" type="text" name="s" id="search-text" value="" onfocus="if(this.value==this.defaultValue)this.value='';" onblur="if(this.value=='')this.value=this.defaultValue;" /><input class="search-submit button" name="submit" type="submit" id="search-submit" value="Search" /></div></form><!-- .search-form --></div></div>
Rare Diseases
<div id="hybrid-nav-menu-3" class="widget nav-menu widget-nav-menu"><div class="widget-inside">
</div></div>
<div class="breadcrumb breadcrumbs"><div class="breadcrumb-trail"> » <a href="https://rare-diseases.ca" title="" rel="home" class="trail-begin">Home</a> <span class="sep">»</span> <a href="https://rare-diseases.ca/2014/" title="2014">2014</a> <span class="sep">»</span> June </div></div>

June 2014

You are browsing the archive for June 2014.

<img width="125" height="100" src="https://rare-diseases.ca/files/2014/06/kelsa-125x100.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="" decoding="async" />

Kalydeco: A ‘miracle drug,’ with a catch

The Globe and Mail
Published June 20, 2014



<img width="125" height="100" src="https://rare-diseases.ca/files/2014/06/partnership-125x100.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="" decoding="async" srcset="https://rare-diseases.ca/files/2014/06/partnership-125x100.jpg 125w, https://rare-diseases.ca/files/2014/06/partnership-150x120.jpg 150w" sizes="(max-width: 125px) 100vw, 125px" />

CIHR-MSFHR Partnerships for Health System Improvement (PHSI): 2013-2014 Grant Recipient!

Congratulations to Drs. Larry Lynd and Conor Douglas on their successful application to the CIHR-MSFHR Partnerships for Health System Improvement (PHSI) 2013-2014 competition! Sincere congratulations to all our team members for their success in securing funding for the iFOCUSS project. Well done!

<img width="125" height="100" src="https://rare-diseases.ca/files/2014/06/Int.-Inn.-Image-125x100.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="" decoding="async" />

A rare opportunity

June 6, 2014 – Researchers from top Canadian Universities are tackling the challenges posed by rare diseases, conducting research that will facilitate evidence-informed decision making.