Rare Diseases

April 2011

You are browsing the archive for April 2011.

Lack of catastrophic drug program a black eye for Canada

The Globe and Mail, April 05, 2011
Canada might not have a national catastrophic drug program, but there are plenty of international models the federal government could look to should it ever decide to adopt one. Canada is one of the only developed countries that doesn’t have a national catastrophic program….

National drug policy for rare diseases has fallen between the cracks

The Globe and Mail, April 04, 2011
Stephen James suffers from symptoms that are as extreme as they are rare: food cravings that compel him to take bolt cutters to the kitchen pantry that his parents have locked, or even a screwdriver to a padlocked freezer. His eating compulsion is due to Prader-Willi syndrome….