Rare Diseases

News & Media

Million Dollar Med$ explores the complicated issue of rare disease medications

The Ubyssey
By Karen Wang
March 7, 2016

High drug prices for rare diseases subject of UBC journalism project

CBC News, The Early Edition
Posted: Feb 29, 2016

Why Canada needs a clear policy on orphan drugs

LARRY LYND and PETER KLEIN
Special to The Globe and Mail
Published Monday, Feb. 29, 2016

Why are drug prices for rare disease so high? UBC journalism project wants to find out

CBC Radio, The Early Edition
February 29, 2016
Season 2016, Episode 300241071

UBC brings attention to challenges of rare diseases

Vancouver Metro
Published February 28, 2016

New UBC journalism project aims to raise awareness about rare diseases

Global News
February 29, 2016

Celebrities and crowdfunding aid Hollywood family devastated by rare disease

Special to CNN, Postdoctoral fellow Dr. Nick Dragojlovic comments on crowdfunding for rare disease research
June 12, 2015

Wall Street Journal’s Pharmalot – Can Crowdfunding Jumpstart Early Stage Drug Research?

Published July 14, 2014

Drug Researchers Turn to crowdfunding as ‘lean times call for creative measures’

The National Post
Published July 3, 2014

Kalydeco: A ‘miracle drug,’ with a catch

The Globe and Mail
Published June 20, 2014