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Rare Diseases

Emerging Research Cluster

Reimbursement and Pricing Policy for Drugs for Rare Diseases

UBC’s Vice President, Research and Innovation (VPRI) provides support to UBC research and encourages collaboration with other researchers, whether locally, nationally or on an international scale. In 2017, our Emerging Research Cluster, “Reimbursement and Pricing Policy for Drugs for Rare Diseases“, was awarded $100,000 to support an international collaboration of pricing policy researchers and other stakeholders. The research cluster, led by Dr. Larry Lynd, aims to continue to contribute to the development of a consistent, transparent decision-making system for determining coverage of orphan drugs internationally. The full Cluster Award application can be found here: VPRI Cluster Grant Submission Larry Lynd .

The Cluster consists of:

  • Larry Lynd, Pharmaceutical Sciences
  • Peter Klein, Journalism
  • William McKellin, Anthropology
  • Jan Friedman, Medical Genetics
  • Lorne Clark, Medical Genetics
  • Milan Patel, Medical Genetics, Rare Disease Foundation
  • Sandra Sirrs, Adult Metabolic Diseases Clinic
  • Craig Mitton, School of Population and Public Health, Health Policy
  • Stirling Bryan, School of Population and Public Health, Health Economics
  • Aslam Anis, School of Population and Public Health, Health Economics
  • Mike Burgess, Biomedical Ethics
  • Michael Law, School of Population and Public Health, Health Policy