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<div class="breadcrumb breadcrumbs"><div class="breadcrumb-trail"> » <a href="https://rare-diseases.ca" title="" rel="home" class="trail-begin">Home</a> <span class="sep">»</span> News & Media </div></div>

News & Media

CBC Ideas Airs Town Hall on Rare Diseases Episode

CBC Ideas recently aired the CIHR New Emerging Team for Rare Diseases and the Global Reporting Centre’s Town Hall on Rare Diseases: Developing a Canadian Strategy for Rare Disease Treatments episode. Hear the episode here. The Town Hall on Rare Diseases brought together a diverse panel of speakers to discuss the challenges of providing costly […]

<a href="https://rare-diseases.ca/2018/10/17/rare-disease-town-hall-developing-a-canadian-strategy-for-rare-disease-treatments/" title="Rare Disease Town Hall: Developing a Canadian Strategy for Rare Disease Treatments"><img src="https://rare-diseases.ca/files/2018/10/TownHall_Facebook-150x150.png" alt="Rare Disease Town Hall: Developing a Canadian Strategy for Rare Disease Treatments" class="thumbnail thumbnail " /></a>

Rare Disease Town Hall: Developing a Canadian Strategy for Rare Disease Treatments

Town Hall on Rare Diseases: Developing a Canadian Strategy for Rare Disease Treatments (October 16, 2018) Town Hall on Rare Diseases brings together a diverse panel of speakers to discuss the challenges of providing costly drugs for Canadians suffering from rare diseases. The public town hall, hosted by Paul Kennedy of CBC Ideas , will […]

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Million Dollar Med$ explores the complicated issue of rare disease medications

The Ubyssey
By Karen Wang
March 7, 2016

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High drug prices for rare diseases subject of UBC journalism project

CBC News, The Early Edition
Posted: Feb 29, 2016

<img width="125" height="100" src="https://rare-diseases.ca/files/2017/01/co-klein-drugs-0228-web-125x100.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="" decoding="async" />

Why Canada needs a clear policy on orphan drugs

LARRY LYND and PETER KLEIN
Special to The Globe and Mail
Published Monday, Feb. 29, 2016

<img width="125" height="100" src="https://rare-diseases.ca/files/2017/01/earlyedition-bc-radiolarge-125x100.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="" decoding="async" loading="lazy" />

Why are drug prices for rare disease so high? UBC journalism project wants to find out

CBC Radio, The Early Edition
February 29, 2016
Season 2016, Episode 300241071

<img width="125" height="100" src="https://rare-diseases.ca/files/2016/11/milliondollarmeds-125x100.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="" decoding="async" loading="lazy" />

UBC brings attention to challenges of rare diseases

Vancouver Metro
Published February 28, 2016

<img width="125" height="100" src="https://rare-diseases.ca/files/2017/01/GBCNH160229LINDA_848x480_633907267771-125x100.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="" decoding="async" loading="lazy" />

New UBC journalism project aims to raise awareness about rare diseases

Global News
February 29, 2016

<img width="125" height="100" src="https://rare-diseases.ca/files/2017/01/150611123802-gray-family-medium-plus-169-125x100.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="" decoding="async" loading="lazy" />

Celebrities and crowdfunding aid Hollywood family devastated by rare disease

Special to CNN, Postdoctoral fellow Dr. Nick Dragojlovic comments on crowdfunding for rare disease research
June 12, 2015

<img width="125" height="100" src="https://rare-diseases.ca/files/2014/08/wsj-125x100.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="" decoding="async" loading="lazy" />

Wall Street Journal’s Pharmalot – Can Crowdfunding Jumpstart Early Stage Drug Research?

Published July 14, 2014